What is Sacroiliitis?

health wellness

Sacroiliitis is an inflammation of either just one or both of the joints that connect your lower spine to your pelvis. It is characterized by extreme pain and a severely restricted range of motion, and may be accompanied by other symptoms such as fever, skin conditions, and diarrhea. Most patients seek treatment for this condition as soon as symptoms begin to manifest, because sacroiliitis is very painful. Diagnosis of sacroiliitis can be difficult, and it is sometimes confused with general lower back pain and other conditions which can cause back pain. Diagnostic tests to rule out other conditions can sometimes be costly, but are well worth the expense.

The condition occurs when the sacroiliac joint between the sacrum, or base or your spine, and ilium, or pelvic bone, becomes inflamed or infected. It can be caused by a number of factors, including trauma to the region, pregnancy, skin infections, osteomyelitis, arthritis, urinary tract infections, intravenous drug abuse, and endocarditis. Infectious conditions of the skin and blood, when left untreated, can sometimes spread to the sacroiliac joint, which is normally protected from the elements by a thick layer of ligaments and fibrous tissue. Individuals who are experiencing infections such as endocarditis should make sure to take their medications as directed, to prevent the infection from spreading.

The sacroiliac joint is a crucial piece of human anatomy. Movement of the joint tends to be limited when the body is in normal condition, because it is the focus of stability which allows humans to walk upright. Sacroiliitis can make it impossible to walk or move, which can further complicate an accurate diagnosis, since the patient sometimes cannot tolerate routine examination. If a patient experiences the symptoms associated with sacroiliitis and is experiencing one of the risk factors, he or she should inform a doctor of this during the examination.

If the sacroiliitis is being caused by an infection, a blood culture can reveal this. A doctor can also use x-rays and magnetic resonance imaging as diagnostic tools. Sacroiliitis is typically treated with rest, corticosteroids, general anti-inflammatories, and physical therapy. If left untreated, sacroiliitis can lead to serious problems with the sacroiliac joint, especially if it is caused by an infection. In some cases, the infection may spread to other parts of the body as well, causing serious medical complications. Back pain should always be addressed immediately, as it can be a symptom of a major medical issue.

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Posted by: suzanne
Try doing glute strengthening and rotary lat exercises.
Posted by: notmuchhope
Well after a friend fell on me recently and having spent a week in hospital, I have been diagnosed as having sacroliitis, I am only 13 years old, can I expect this to continue this was bought on by the trauma of having my friend fall on me and up until then I hadnt really felt anything!! Can I expect this to be with me forever now, this terrible pain at the beginning, high temp and vomiting! at the moment I am walking with crutches, it was diagnosed with 2 MRI scans and blood tests and at the moment we are waiting for my blood levels to come down!
Posted by: anon15425
Hi guys, I'm 21 years old and have a problem with sacroilitis for about 2 years now. It started in August 2006, when the pain was too severe and i could hardly sleep in the night. I was hospitalized too for a while, but as usual the docs could hardly diagnose it. I was on pain killers, and the pain went around November. From then on, i was totally pain free, and could even play football n other sports till about August last year, when it all came back. I haven't been pain free since, and even though its much better now and isn't severe, it's still there. I still can't play any sports or run for more than 5-10 seconds.

I recently visited a doc who's like a chiro, and he told me he could cure me completely. He realigned my back which instantly took most of the pain away. He also suggested accupressure(a chinese method), in which i need to stick a few magnets to different parts of my hand overnight. However, the pain was never cured completely. Since im studying outside of my hometown i can only see him once in six months, and he said that once he has 5-6 regular sessions with me he'll completely cure me. Do you think it's possible? This really is a handicap and i can't tolerate it anymore, as i see other ppl of my age doing things i can't do. Any suggestions?

Posted by: angel111
I was diagnosed with sacroiliitis after my second pregnancy. In the beginning, the pain was so great that my entire left leg would give out. Sleeping was difficult as well. After reading some of the discussion postings, it sounds like physical therapy does help, so I guess I'll start going. I have been doing yoga, stretch exercises and ab/glut exercises and the pain is less frequent. I always feel more pain shortly before and during rain. I also take Motrin about 3 times a week. It works for me. I really do recommend yoga.
Posted by: jzumwalt
Hi I have been in pain for about a year. I thought it was my scoliosis. then the pain got unbearable. I found out that I have sacroiliitis. My wife thinks that I'm just lazy. I can't do anything for long periods of time. I can't go to class because it hurts to sit for to long. I have been taking a lot of vicodin. I have been drinking a lot too. I don't have insurance, I'm a full time student. I have two young children 3yrs. and 1 yr. I don't know what to do. I don't want to live the rest of my life like this, but I can't give up because of my kids. I need some help and I don't know were to turn to. I'm 27 and feel like I'm dying.

Posted by: suzanne
Along with the above, try this exercise:

Standing with feet shoulder width apart, swing your arms together from side to side at shoulder height, twisting your torso as far as you can while keeping your hips stable. More effective is holding a rod across your shoulders and doing the same twisting movement, keeping head and hips facing forward. I have been doing this exercise and I am the closest to being pain free as I've been in 3 years! (Note: doctors recommend treating sacroiliitis with lat rotary and glute exercises.)

Posted by: suzanne
You will also see improvement by doing glute and lat strengthening exercises.
Posted by: silva
Dear chingcu

Thanks for sharing your experience with us, for almost 2 years I've thought I had sacroilities, but for the last 2 months I've started to visit doctors again and took many MRIs and blood tests, my problem was that I am having much pain and swelling in my hip but all my tests say that I am normal!! the hip joint is in it's place all dimensions are correct but no one knows why I'm having this pain and why it's swollen!!

As you said i always keep warm, when I feel a little bit cold my pain increases!

So 2 weeks ago one of my doctors advised me to visit one woman, she is a Bioenergy therapist, with crystals and herbs and laser.... so because I was just looking for a diagnosis, I was ready to do anything, so I went there and she checked all my energy paths using a device that is connected to a program in her PC. this device measured my energy and found there was a problem with my gallenblase, in the program all my inner organs were shown in different colors, each color indicates something. İt was clear that something was wrong in my gallenblase, and this has caused a kind of bone infection that hit the tissues between the skin and the bone and she gave me the name of the bacteria that was responsible for that. that was a great relief. she gave me a strict diet. All the things I used to eat are now forbidden, and I'm eating different things now. next week I'm going for my third seance, she told me it will take time but be sure it will go a way....next time we will start with herbs that are good for me along with the laser therapy.....

Silva

Posted by: anon10520
I am posting to share some of my success with dealing with sacroiliitis.

I am 30 years old and have had the condition since I was 18. It was misdiagnosed at first until I was 20 when I was involved with a car accident that aggravated my back. After the doctor analyzed my blood and x-ray of my back he was able to determine that I had Sacroiliitis. The joint specialist prescribed vioxx which was later banned and I moved to celebrex. Read a lot of bad things about anti-inflammatory so I tried not to take it unless I got attacks so bad where I basically can't move due to the severe pain. So I suffered for a long time, but like most everyone here, you find your ways to deal with the pain (i.e. certain movement, positioning when you sleep, not sitting too long, etc. etc.)

The one thing that worked very very well for me so far is keeping my legs and feet warm. I basically wear thermal socks and thermal pants all the time (no shorts except for when i'm vacationing in a tropical climate or it's a very very hot summer) otherwise I never ever get my legs and feet cool. It really works for me, my doctor never prescribed this and it was my mom who told me to keep warm (as asians, we don't like any cold in the body, drink hot water, eat hot food, dress warm). I used to like wearing shorts and no socks around the house but I don't do that anymore. Ever since I kept warm, I've not had an attack. On occasion I would think that since it's summertime, I'll wear shorts around but then at night when the temperature drops to about 10-20degC, I start feeling the tingling sensation on my SI joint. That tells me to put something warm on. You slowly get used to the warm and start to be afraid of the cold. The only drawback is that sometimes my privates gets too hot but you get used to that too.

The other thing that I suffered is I would wake up with a stiff lower back in the morning and sometimes it was so stiff that I have a hard time breathing. What I found effective is sleeping on an air mattress. I have to reduce the air pressure a bit to the point that my entire spine is supported when I sleep on my side. After about 2 days of sleeping on it, I get full relief from a stiff back.

Finally, I stayed in beijing china for 10 months and during that time I was determined to find a cure (through alternative medicine) for my sacroiliitis. Like here, I had a hard time convincing the doctors that I have that condition because I walk normally but after they saw my xrays they are convinced. After going to the top alternative doctors there, I basically learned that there is a way to cure it, it will mean having to drink bitter chinese medicine from exotic ingredients for months. and they said that their is no guarantee that it will not come back. since this is autoimmune disorder, certain things may trigger it again. I tried the medicine for a few weeks costing me $40 a week of medicine which wasn't cheap over there. I did feel relief but I decided to stop because my stay there was about to be over and I could not get these ingredient where I live in Canada and the fact that there is a chance that it will come back. I've not had an attack for a while (except for the occasional pain when I forget to keep warm) so I discontinued. During my conversations with the alternative medicine doctors there, they told me two things that I laughed at at first but soon realized that there is truth to it. This doctor claimed to be very knowledgeable of this condition and he is very old and seem to have a lot of experience and is apparently well known over there. He said that I should not drink cold beer at all because it will go straight to my joints. Also, I cannot have extended sexual activity or masturbation as this will cause too much loss of fluid around my hip region. I know it sounds funny but I observed that this was the case. Now I don't drink beer, and since I have a gf, I do have to have those extended sessions and I find that afterwards I start getting tingling sensation on my SI joint, at which point I do whatever I can to keep extra warm and drink lots of warm water. Sounds crazy I know but definitely works for me.

I been meaning to post my experience in hopes that it may help someone out there. It doesn't hurt to try my suggestion and I would love to know if it will work for you just as much as it is work for me. I know how painful an attack feeling like you just want to cut your legs off and be done with the severe pain. I am so scared of having that experience again and when I read a people suffering from this condition on these forums, I can't help but feel very very sorry.

Take care everyone,

chingcu

Posted by: tnc1973
I have a question about sacrioliitis. Is it true that once you have this condition that you will have it for life? That sometimes it may feel better and other times will get worse? I have had this problem for about a year now. I am going to physio therapy, have just been put on Celebrex, go to Chiropractor, use heat and Tylenol. I guess I am wondering if a job that is physically demanding is appropriate for someone with this condition. Will I be able to return to my job or will I have to look into another type of work? Thanks so much! Hope someone can answer these questions for me!
Posted by: suzanne
Hello Anon9066,

I'm curious to hear how your doctor explains why exercise works only temporally to relieve pain. I have been strength training and am progressively been getting better without meds. What meds has he been prescribing?

Posted by: anon9066
Hi everyone! I’m 17 years old and the last month I was diagnosed with sacroiliitis. It all started 2 years ago, when a strong pain attacked me, it was difficult to be sitting or standing for a long period of time, and almost impossible to lay dawn, for me the night was a whole nightmare because the pain in my lower back was really strong and at the morning when I woke up it was even stronger. Because of the pain I started to visit doctors and physical therapists, but they all said it was cause of the stress product of my school, and told me to do some specific exercises. It was hard but usually the pain left me for a few hours after I exercise, then it came back, stronger. Because of the pain I started to do some movements with my back that make me feel just a little bit better, so now the pain is located in my upper back because of those movements, that’s when I decided to go to one of the best orthopedists in my country.

When I visit the doctor for the first time he practices a physical test on me and found the real diagnosis, sacroiliitis. He explained to me why exercise made me feel better for a while, but told me to be careful because what I needed was rest and a strong dose of medicines. He told me to put over my sacroiliac zone wet towels, and over them a bag with hot water, which really helps me to reduce the pain. Also he prescribes me a series of medicines, some pills and some injection. Now, one month later, 80% of the pain is gone, and I haven’t finished all of my meds. Once I thought I would have to live with this pain for the rest of my life, and I’m sure you too. But now I know there’s a cure.

Posted by: suzanne
Chris,

I really feel for you, because 2 1/2 years ago I suffered a similar debilitating pain that left me barely being able to move for a few days. Just laying on the couch was agonizing, and crawling to the bathroom was a journey through hell. I told myself I did not want to live the rest of my life like this. Fortunately, I improved to the point of being able to stand, but I still could not support my torso on my hips without help (I borrowed my mother's walker!) As I mentioned earlier, it has been recommended that one should do glute exercises for sacroiliitis and I have seen a trainer to learn some. I have discovered that compared to my "good" side, my glutes and quads are extremely weak. I have always been physically active doing cycling and power walking, but still I developed this "imbalance" that can only be improved with strength training of the affected side. I am still not out of the woods, but I at least have good days now...and hope.

Posted by: chrishamblin
Dear ladies,

I am in my 3rd trimester, my second pregnancy. I was diagnosed w/ Sacroiliitis after my first pregnancy. I wasn't even aware that I had it...I just thought that my hips were out of alignment after my delivery and that is why I am unable to lay on my back. I was diagnosed after an MRI. Well, it doesn't go away w/ pregnancy...the pain for me has only worsened. I have had to crawl myself to the bathroom at night or lay on the floor until I get the energy to try to get up. I can no longer clean my own house or do anything on my own. As you know the pain is so debilitating. When I bend over to pick up a toy, I fall to the floor in pain. There is nothing I can do other than light physical therapy once a week, my only relief. Talk to your physical therapist or your OBGYN about pain relief and healing your body before you become pregnant. I did not follow my doctor's advice before I became pregnant for the second time and now I am most certainly paying for it.

Posted by: silva
Dear Natie

What you have said had helped me a great deal. because I want to have a baby it will be my first child. but I was afraid. I have been to 5 doctors and each one gave me a different diagnosis. My first doctor told me I had sacroiliitis. and after 6 months of medications I went to other doctors who told me I didn't have sacroiliitis, now I'm just looking for an answer! the last doctor I have been to told me it could be a disk in your back that's affecting my hip and leg, so tomorrow I'm having my MRI for my spine, I really hope I don't have sacroiliitis !

Posted by: Natie
I believe that the issue of pregnancy and how it will affect Sacroiliitis depends on the individual. I am 29 years old and I have been suffering with SI now for almost 6 years. I just recently had a beautiful baby boy who is now almost four months old. My pain is usually at its worst during the colder months (October - April or May) with the occasional onset during the remaining months of the year. During my pregnancy I experienced very little to no pain and have only had two small episodes since my baby's delivery this past October. Both my GP and Rheumatologist agree that in some cases the miracle of pregnancy takes over and pain disappears possibly as a protection to the fetus. It has also been noted by my doctors that they have seen this before and that it will usually last (being pain-free) for up to six months after the birth. I hope that with this being said that some of you may consider the wonderful experience of pregnancy, childbirth and loving a child. Even if I had suffered through it all... I am going to take that chance again! There is no love greater than the love a mother has for her child!
Posted by: laneysacro
I suffered from chronic back pain for 18 months. I could not stand for longer than a few moments, I had to physically lift my right leg or left leg into the car, I couldn't sit or sleep comfortably. Then my Doctor suggested Bio-Kinetics. I went to a Bio-Kineticist and today I am pain free. I was given exercises to do and as long as I do them on a regular basis I am totally pain free. It cost me a bomb, but it was worth it. I was also given exercises for my knee to strengthen it because got osteoarthritis. I recommend Bio-Kinetics any day.

ELaine

Posted by: suzanne
Hi Wendyh,

Have you been checked for lupus?

Re: sacroiliitis, what I'm reading here is that the best results in alleviating pain is through strength training of the glutes and quads!

Posted by: wendyh
Suzanne, I don't remember what website that I was on (and cannot find it now), but it related sacroiliitis to behcets syndrome. My Doc also mentioned Reiter's Syndrome, but I only have one of the symptoms, so I know that is not it. I do have several different issues with my body, mainly skin disorders. My doc told me that they are all related to each other, including the sacroiliitis.
Posted by: anon7038
I was diagnosed 6 months ago with Sacroiliitis and immediately went to the PT. He gave me some core strengthening exercises to do and some stretches. I am 100% pain free with an occasional minor flare up. The most effective exercise was to stand sideways on a step on one foot so that the other leg is hanging in the air. Relax the hanging leg as much as possible to allow it drop bellow the level of the step. Then raise it up by lifting your with your hip. Kind of like a belly dancer. The only movement in your body should be in your hip. Repeat this for each leg 10 to 15 times. I think this stretches the muscles and tendons of the SI joint and promotes healing. I also have been sleeping on a heating pad which has helped quite a bit as well. Good luck!!
Posted by: suzanne
Agreed, celiac's disease is not uncommon and a cause of a myriad of undiagnosed health problems, and granted people who have sacroiliitis may be celiac, but I have never heard of celiac's causing sacroiliitis or visa versa, and I have read a lot about both health issues. If you have celiac's disease DON'T eat gluten, if you have sacroiliitis do leg presses or one legged squats! If you are celiac, dropping gluten, who knows, may clear up your sacroiliitis, but ridding yourself of sacroiliitis will never cure you of celiac's disease if you have it.
Posted by: anon6894
I have been reading that sacroiliitis is closely associated with celiac disease, which is an autoimmune disorder in which gluten is perceived by the body as foreign. It destroys the small intestine villi. If you have sacroiliitis, it is worth checking into testing for celiac disease. If you have it the only cure it to not eat gluten for the rest of your life, so that your intestines heal. Many other symptoms are associated with it as well--mouth ulcers, abdominal pain, diarrhea, depression, etc. There is a long list of seemingly unrelated symptoms. Good luck to all of you!
Posted by: suzanne
Hi Wendyh,

I have never heard of this behcet's syndrome, but it sounds pretty serious (skin ulcerations, inflammation) but I didn't read anything about hip pain associated with it. I have, however, heard of eye inflammation associated with sacroiliitis. All kinds of inflammatory diseases are can be linked to excess weight though. Don't let pain keep you from moving! I have been doing those one legged squats for a few weeks now and I have very little of the leg/hip pain I suffered with for 2 1/2 yrs. I can do yoga again and I plan to start going to the gym to do leg presses with machines. Has this exercise working for anyone else with sacroiliitis?

Posted by: wendyh
Thanks Suzanne for the info. I will definitely be trying that!
Posted by: wendyh
Hey everyone. I was diagnosed with sacroiliitis about 5 years ago. I am currently 26. It started off as just a tightening pain on my left hip, and when I sat down for periods of time, my left leg would go numb. My doctor gave me a corticosteroid shot and it helped for about a month and then I gained about 30lbs. I went back last year cause the pain was getting to be too much and he gave me another shot that made me gain 30 more lbs and did absolutely nothing for me. So I am stuck taking NSAIDS with acid reducers to control the indigestion. I have done some research on it and found behcets syndrome. Some of you need to read up on it and see if it matches your symptoms. I have talked to my doc about it and he agrees with me that that is what I have.....

Good luck to all! Oh and p.s., I am never getting pregnant....I already figured it would hurt and after reading everyone's stories, I know now I was right!

Posted by: suzanne
Silva & others,

Every day gets better! The "tightening" pain I had in the area has been replaced by a sore muscle pain, the type you get when you haven't worked that muscle for awhile. That tells me that that those muscles are finally getting some blood to them and are being reconditioned. I have been drinking lots of water to flush the released toxins away. Thank you Dr. Mirkin!

Posted by: silva
Thank you Suzanne. I will try that exercise. hope it will work for me!
Posted by: suzanne
I am 51 and have been living with pretty much constant agony for 2 1/2 years now after "throwing my back out" doing a lot of cycling. I have seen every professional "...ist" there is out there, with only minor results. A rheumatologist gave me hope after prescribing core strengthening exercises to help with degenerated discs in my lower back, but that hasn't really touched the problem. It feels like a tightening, twisting feeling around my left sacroiliac joint with pain that sometimes radiates to my toes and my body feels "out of kilter" or "corkscrewed". Sound familiar? I googled "sacroilitis" and came across your web site and another posting by Dr. Gabe Mirkin (well respected US physician) who wrote: "Move your hands from the top of your pelvis at your sides around to your back where you will feel a bump just to the side of your spine. That's the sacroiliac joint where your pelvic bones attach to your spine. If it hurts to touch that spot and when you bend forward or backward, you probably have sacroiliitis. This research shows that people with sacroiliitis have an overactive gluteus muscle in the buttocks below that painful joint and an overactive latissimus dorsi muscle in the back above the sacroiliac joint on the other side. Special rotary exercises that strengthen the latissimus dorsi on the other side and leg press exercises that strengthen the gluteus muscle on the same side were effective in controlling back pain in the sacroiliac joint."

I have started with leg presses: Stand with arms at sides (hold on to countertop on one side to steady, if necessary). Cross lower leg above knee of supporting leg. Squat down as low as possible. Extend knee and hip until leg is straight. Return and repeat. Continue with opposite leg. You can try this later holding on to dumbbells. Range of motion will be improved with greater leg strength and glute flexibility. Forward knee should point same direction as foot throughout movement.

This exercise is working for me and for the first time in months I went on a power walk without being in agony after!!! Please let me know if this works for any of you.

Editor's reply: thanks suzanne, hope this advice can help others with the same condition!
Posted by: anon5831
Hi, everyone,

I'm so sorry to hear how many of you have this problem too. At least I'm having it at age 60, not when I'm really young. It has taken me 1-1/2 years and many doctors to get the diagnosis of sacroiliitis, and I'm hopeful I'll get better now. My main problem is that I can't tolerate sitting. It is SO painful after about 10 minutes. And I'm a psychologist, so it is seriously affecting my work. I understand from my orthopedic surgeon that the best treatment is physical therapy, injections in the SI joint, and high doses of non-steroidal anti-inflammatories. Physical therapy has really helped me temporarily but the minute I sit for a half hour, all the symptoms are back. I'm hopeful about the injections. Will keep you posted. In the meantime, take good care of yourselves, and have faith that somehow we'll find a way to take care of this problem.

Posted by: silva
Dear friends

thanks for your replies. just last week I went to an Orthopedic doctor and got a new MRI, the doctor checked the results carefully, the results showed some fluid gathered in my hip and other than that everything else was normal. the doctor didn't care much about it and told me I should apply ice bags at that area (knowing that when the weather is a little bit cold my pain increases) so I don't know how I'm gonna apply ice! İf there is BONE CYST shouldn't it be clear in the MRI? And I really want to have a baby and all my doctors said pregnancy will not cause me any problems, yet I'm too scared. Also I'm reading about acupuncture, some say it helps with decreasing the pain, others say it doesn't. I wish there was a doctor here reading these posts!!

Posted by: kjgearhart
I am 30 and have just been diagnosed with Sacroiliitis. I have had intermittent pain for almost 8 years. I started to notice it after my first pregnancy. I had my second child about a year ago and the pain was so horrible throughout my entire pregnancy. My personal experience is that pregnancy increases the pain and intensity of the condition. Just recently the pain returned out of nowhere, and I cannot seem to get rid of it. I am now under the care of a neurologist who took xrays and an MRI and all was fine. He also gave me a prescription of vicodin which does nothing for my pain. I am about to begin 4-6 weeks of physical therapy and injection at the site. I will keep you posted with the results.
Posted by: anon5496
Dear Sylvia-

I had the same problem in my right hip for almost eight years. I went to a dozen doctors, including a rheumatologist, and everyone missed the problem. Finally, my new OBGYN told me that if I thought I had a problem in my hip bone, I probably did. She sent me to an Orthopedic doctor who looked at my most recent x-ray, and told me I had an enormous BONE CYST in the bone that was causing the swelling and pain, and that I'd have to have emergency hip surgery because the bone was almost all eaten up. The cyst was as big as a golf ball. Then I found out that most doctors don't usually look at your actual x-rays, they look at a typed paper report that has the opinion of the radiologist who took the x-ray. That was last year, and now I always ask if they've looked at the actual x-ray, or the paper report. I'm better, but I have sacroiliitis in the lower back, and I don't think that's ever going away unless they prescribe something stronger than Aleve or Tylenol. I have been told it will get worse with pregnancy because it will stretch the sacroiliitic joint out more. That doesn't encourage me, because it already hurts plenty.

Posted by: silva
hi

Well there is one thing for sure that all my doctors have agreed on. they've told me that pregnancy and birth will definitely help me. Because having birth gives a chance for the woman's body to renew itself. So I have stopped my main medicine and now waiting for 6 months till my body cleans itself.Then I can get pregnant (this is all under my doctor's supervision.) I am willing to take my chance. I would like to have a baby soon and if it wont help I don't think it will make me worse! What does your doctor think about it by the way?

The doctor I have mention before stays in Jordan. he has a website but not all information are translated to english.

right now I am willing to try ANYTHİNG just to get better..

Posted by: anon4829
Dear Silva,

It is the same with me. I've cried so much to see it, and I don't know what to do with it.

Can you send over some more information about the doctor and his idea of controlling the food, does someone know what to do with it and what is happening when women try to get pregnant?

Posted by: silva
Hi, it's me Silva. has any one of you noticed a change in the shape of the hip? I'm still having pains and now I have noticed that my right hip is bigger than my left one. İt's somehow clear especially when ı wear pants. it hurts me much to see that!

I have read about one doctor and sent him an email. He basically treats his patients by controlling their food. So, I think ı will join his list, after all I have got nothing to lose.

Posted by: anon4586
i am 27 years old. i just made it back home after a 2 week stay in the hospital. i have been diagnosed with sacroiliitis. it started off as a crap in my left butt cheek/hip one afternoon. i woke up in the middle of the night and couldn't walk. i had to crawl on the floor in the worst pain of my life just to get to the phone and call someone for help. i have never felt such pain in my LIFE! i was in the hospital for about a week and a half before the doctors finally diagnosed me. i'm basically having to learn to walk again. i'm really hoping things are going to get better, and quick. i can understand everyones pain and hope no one ever has to experience something like this.
Posted by: anon4473
I'm 17 and when I was 12 I got a regular flu shot from a free clinic. Later that evening I began to feel pain in my lower back, only on the left side. The next day I could barely walk, and the day after I couldn't walk at all. I was this way for a month. Undergoing a lot of tests at the hospital. They eventually decided that I had sacroiliitis and they gave me pills to take for a month. It went away within a month and now I feel pretty good except for the random pain I experience at night usually. Sometimes in the morning. It's not completely gone, but I can walk again :). I used to be a pretty good runner, but it hurts now when I run for too long or too hard so I only do it for fun now.

Posted by: anon4198
I'm 28 years old, from México. About 7 years ago I began to have this pain. A Dr in UNAM Medical Center told me I had Sacralgia, she told me take Complex B Vitamin and rest, because it was caused by stress... and some laser therapy . I have suffering about 1 and a half year this pain every day. But I found it was associated with sleeping on a wood bunking or lying on the soil, I stop doing that and the pain almost disappears. It appears some times, now I'm suffering it again.

And because of my work I knew about the sacroiliitis and I'm worried about having this disease... Do you think I could have it?

Posted by: anon3993
I just turned 19 years old and was just diagnosed with sacroiliitis. It is so painful. I cant walk, sit or move at all for very long. I can't lift anything. Is this curable? or will I just have to take pills for the rest of my life to control it?
Posted by: anon3655
I was told I have sacroiliitis about 10 years ago. I am now 32. I suffered with pain from my lower back all the way down to my toes. Some of by toenails even turned black. My specialist told me my sacroiliitis is linked to colitis. I used to take anti inflamatories, they did not work and now I can not take any because I have grown allergic to them. I have gone for many treatments of acupuncture this did seem to help me over time about 9 treatments. Or it could be that I started to eat high fiber and oatmeal everyday. I have not had acupuncture now for about 2 1/2 years. My pain seems to be keept at bay for the last 2 1/2 years. However I do have small what I call tightening and mild pain.
Posted by: silva
hi. I'm 26 years old I come from Syria. now moved to turkey. 9 months ago at night a strange pain started at my right side. and since that day the pain never left me. 3 months after the pain started ı went to many doctors and never knew what was wrong with me. my pain was so great ı couldnt even talk. the pain was mosly on my right side then started to go down to my hip bone. then one doctor asked for x ray and some blood tests and told me ı have sacroiliitis. and gave me one cortizone injection and some pills for pain and one medicine called SALAZOPYRİN. and said ı have to take it for 6 months. but the pain never left me. some times ı wish to die. I'm still very young I don't know how it happened. ı cant sit for long ı cant walk more than 20 minutes. then ı went to other two doctors one of them told me ı have extra Uric acid (level 5)and it causes me pain and the other one said nothing is wrong with u. just infection and it will pass. its almost one year ım living in constant pain. can acupuncture help me to stop the pain. do ı really have sacrolities? what should ı do? I am ready to give all my blood tests results. new ı found ı have 197 level of B12 vitamine and ı started to take B12 injections

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