What is Atypical Ductal Hyperplasia?

health wellness

Atypical ductal hyperplasia (ADH) is a medical condition in which the cells which line the milk ducts of the breasts experience abnormal growth. This condition is not cancerous, but an incidence of atypical ductal hyperplasia can indicate an increased cancer risk for a woman. As a result, doctors usually recommend careful monitoring and follow-up in patients who have exhibited atypical ductal hyperplasia in one or both breasts.

The term “hyperplasia” is used to describe any increase in the number of cells in a particular region. A number of things can lead to hyperplasia, and the condition is often so benign that people don't even notice it. In other instances, the hyperplasia causes organ displacement, soreness, and other symptoms which make it noticeable. In the case of atypical ductal hyperplasia, the condition is usually diagnosed during routine mammograms.

On a mammogram, atypical ductal hyperplasia shows up as a small deposit around the milk duct. A doctor will usually ask to take a biopsy of the area to confirm that the growth is atypical ductal hyperplasia, to eliminate causes such as a malignant tumor. When the biopsy confirms that the patient has atypical ductal hyperplasia, the doctor may discuss a number of options with the patient.

The simplest option is to leave the site alone. Because this condition is not cancerous, it does not require treatment. However, doctors will usually recommend that their patients monitor their breasts carefully during monthly breast self exams, and patients may be encouraged to have clinical breast exams and mammograms on a more regular basis. By remaining vigilant, patient and physician can catch the signs of breast cancer early, if it emerges.

Some women choose to take prophylactic drugs if they develop atypical ductal hyperplasia, especially if their family members have a history of cancer. These drugs can help reduce the risk of breast cancer. More radically, a woman may opt for a preventative mastectomy. This is not a choice to be undertaken lightly, and it is generally only considered when a woman has a substantial family history of breast cancer along with other risk factors which elevate the probability of developing breast cancer.

By performing regular breast self exams and receiving recommend healthcare screening such as mammograms, women can identify atypical ductal hyperplasia and other health conditions early and make proactive choices about their health. Women should talk to their doctors about recommended preventative health screenings.

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18
I am 58 years old. I had a stereotactic done and was found with ADH. I had two children, have no family history of cancer. The doctor recommended me to have a surgical procedure to remove the tissue around the area. He gave me the statistics that 20 percent of the ATD usually are cancerous and regardless of the finding, I will need to start the cancer risk reduction drug treatments for 5 years?
- frilin
15
I am 61 y/o female who on work-up for breast reduction was found to have suspcious area, this was biopied and returned negative,the plastic doctor had a surgeon remove the lesion prior to him perfoming reduction, frozen sec. was negative, when I went for F/U was told ADH was found in the margins of one section only. No breast ca in family, but strong ca(ovarian, stomach) in family. I had hyst. age 49 , am healty. Started on Evista, but this medication is not agreeing with me, hot flashes, chills, cramping in hands, feet, hair loss, difficulty focusing. What are the odds that I will poss. develop breast ca, given my age, I want to stop Evista.Please help me with some more info. NJC
- anon39196
14
Denise in AZ

I was just diagnosed with ADH and I, too, have breast tenderness *all the time*. My OBGYN didn't even really know what this ADH was, but the cancer specialist said that I should just do yearly exams and mamos. I was not even given a consultation. I have a sickening feeling, should I be more aggressive or count my blessings?

- anon39114
13
I am 50 years old and over the past 4 years, my mammograms called for further atttention. I started with a cyst which was aspirated. From the aspiration, I was told that my breast films looked dirty and a biopsy was recommended. My biopsy was performed in 2008 and my diagnosis was ADH. My OBGYN recommended in 2009 that I see a breast specialist and have it removed. It was, as he referred to it, was more than a lump. I had no idea that ADH was found in the milk ducts. I recently had a lumbectomy, partial mastectomy, which I believe was performed only to confirm the diagnosis of ADH. The breast specialist stated I am high risk for breast cancer and recommends meds to begin in January 2010; Tamoxifen or Evista. What on earth should I do? On other option was referred and not recommended is bilateral mastectomy.
- anon38926
12
What is the ICD-9 code for atypical ductal hyperplasia?
- jgoar
10
I was diagnosed last year with ADH. I had the core biopsy and the surgical biopsy. No meds. This year my mammogram came back with questions. I just finished an ultrasound and "extra view" on my mammogram. I got the call that I'm being referred to a vascular surgeon (again - same one as last year). I thought I would be okay after the surgeries. But I'm back again. I don't want to freak...but, I am.
- anon36069
9
Just been diagnosed with ADH which 2 pathologists

read as benign. After seeing a breast surgeon, he will remove tissue but added that 3 out of 20 might

be cancerous upon his surgery...how did i go to

benign to 3 out of 20 possibility?? not clear to me...is there tissue that he removes that the 2

radiologists did not biopsy??

- dixiegypsy
8
I am 49 yrs old. Mother and 2 aunts with breast and ovarian CA. I have just be diagnosed with ADH thanks to a very aggressive Gyn/Onc that could not be seen on mammo or ultrasound - found with MRI and biopsied. Am seeing surgeon next week. My husband and I have already been discussing prophylactic mast as well as other options. A very awakening finding although not unexpected. Not real sure what to do yet.
- anon32987
7
I am a breast cancer survivor from 06. I have now been dx with Ductal Hyperplasia and I am leaning toward the mastectomy. I know it is radical, but I am 56 and I don't want to worry about this every three to six months. Since I have had the original treatment for ductal cancer already, my only option if dx would be a mastectomy anyway and I don't want to wait for the other shoe to drop. I fear cancer being in lymph nodes and spreading to other areas. I am blessed with a fabulous physician who takes nothing of face value and I do trust her.
- jboggs
6
I have been diagnosed with Atypical Ductal Hyperplasia, or ADH. The Doctor said it was between a 0 and a 1. Breast cancer runs in the family. I have discomfort in my breast almost all the time.

In 2007 I had my first Biopsy it was benign. At times my husband just looks at my breast and I get angry. I am 34 years old. I have had people tell me wait to see if it turns Cancerous and others say get them cut out. What should I do? Danise of Phoenix, Arizona

- Danise
5
I was diagnosed with atypical ductal hyperplasia after having a milk duct removed. The doctor said I should have yearly mammograms and an MRI in three months. He also suggested the drug Tamoxifen. I am 63, have never had children, am overweight, never had a blood clot, had a hysterectomy at 24. The side effects of hot flashes, possible blood clots, arthritic symptoms are frightening, as I'm usually warm and already have some arthritis. But I feel I may be passing up a good preventative if I don't take it. Anyone out there taking it already?
- anon30783
4
To anon28123

Thank you for your input. This is a new and uncomfortable situation for me. I think I acted a little to drastic when I found out. My only concern is having 3 sisters that have been diagnosed with breast cancer or have had precancerous cells. I am shying away from the double mastectomy, but am still discussing it with my doctors. I do have an MRI scheduled in May. That is the direction I am going in now. Mammograms and MRI's every year with regular check ups. Again thank you for responding.

- anon28207
3
To pelkylj: I think a mastectomy is a pretty drastic reaction. Atypical ductal hyperplasia *isn't* cancer. It doesn't even progress to cancer in many cases.

Has anyone in your family pursued genetic testing? I think that would be your best option, and then you could consider a mastectomy based on whether you have a genetic predisposition to breast cancer.

- anon28123
2
My question: I have been diagnosed with Atypical Ductal Hyperplasia----Not cancerous but I hold a higher risk of getting breast cancer than the average female...i had the cells removed and I have to follow up on mammograms.

Now i applied for the police dept. in my city and am at the end of the process to start the academy in May, but city is reviewing my medical. I got a letter from the surgeon stating diagnosis, prognosis is very good and I have no problems related to my breasts that would interfere with me being a police officer...Now, while I am under review does anyone out there know if the city will hold that against me and not hire me or with my letter from the doctor --would they allow me threw knowing my diagnosis?

- Donnajb
1
I was just diagnosed with Atypical Ductal Hyperplasia. Two of my sisters have been diagnosed with breast cancer. my oldest sister found out when she was 48 and died at 50 the second sister was diagnosed at 44. I am 44 years old, should I consider a mastectomy of my breast?
- pelkylj

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Written by S.E. Smith
Last Modified: 19 August 2009

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