My mom had this fetal syndrome when she was pregnant with me. Thankfully, the only defect I was born with was the joining of my pinkie and ring finger on one hand. The doctors separated them at birth, so it's barely noticeable now.
Amniotic band syndrome is not genetic, unlike what most people think. But since I'm newly married and planning to have kids, my doctor suggested that I have genetic testing done anyway.
He said that sometimes, doctors are not able to differentiate between defects due to this syndrome and defects due to genetic disorders. And a false diagnosis is possible. I'm pretty sure that I was not wrongly diagnosed, and I have no worries about a future pregnancy. But I will still get the genetic testing to put my mind at ease.
Has anyone else with an amniotic band syndrome defect been told to get genetic testing done by their doctor?