What is a Brain Stem Stroke?

health wellness

A brain stem stroke is a stroke which originates in the brain stem. Because the brain stem handles many of the body's basic life support functions, such as breathing and heart rate, a brain stem stroke can be fatal. As with other strokes, early treatment is essential, with the prognosis being the best if the patient can be treated within hours of the suspected stroke. Even with immediate care, however, the patient may die or enter a coma, requiring life support to stay alive.

Strokes are conditions characterized by the sudden death of groups of brain cells. They can be caused by clots of blood in the brain, bleeding in the brain, or when other interruptions to the blood supply emerge. Within minutes of a blood supply interruption, cells can die, because the blood carries vital oxygen to the cells, and transports toxic wastes away, acting like a superhighway to keep supplies flowing smoothly. A traffic jam, as it were, can cause cells to die.

The symptoms of a stroke are different, depending on where in the brain the stroke is located, and doctors can use the symptoms to pinpoint the site of the stroke. In the case of a brain steam stroke, the patient often experiences vertigo, slurred speech, and difficulty speaking. Functions like breathing and heart rate may also be interrupted, and some patients enter what is known as a “locked-in state,” in which the patient can sense stimuli, but he or she cannot respond. The locked-in state is also characterized by paralysis.

Treatment of a stroke in the early stages requires resolving the blood supply issue, with the hopes of restoring the flow of blood before too many brain cells are damaged. If the stroke has progressed beyond the point where treatment would be effective, supportive care is used. In some cases, patients may be able to recover, although their functionality will typically be greatly impaired, and they may need physical therapy. In other instances, a brain stem stroke requires life-long use of supportive medical equipment such as ventilators, and the patient may experience a drastically decreased quality of life after a brain stem stroke.

Strokes can be very dangerous, and they can also be very rapid. If someone appears to be experiencing the signs of a stroke, he or she should be taken for emergency medical treatment. Doctors would much rather tell people that a problem isn't a stroke than be faced with a patient who had a stroke hours before he or she was taken in for care. Because a brain stem stroke can be fatal, it is always better to be safe than sorry.

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34
I had a stroke two weeks ago. It is and it was very hard with my right foot and hand paralyzed. Now I can move the right foot and hand and I am working very hard. Vision still burly. I am a 50 year old man.
- anon53567
Editor's reply: Good luck in your recovery! The wiseGEEK Team.
33
my loved one had a brain stem stroke five days ago.

He received tpa meds after going to er.

The first two days he could speak with slurred speech, could move his limbs. on day four, he had a nose bleed and they had to put him on respirator. he is now sedated and on temporary feeding tube.

The doctors are advising to wait three to five days to monitor and see. Everyone is different and cases vary.

We trust God will will prevail. My friend is a christian and ready if the Lord takes him home. We love him and are not giving up.

He has a family who cares and two grandchildren who need their grandpa. Please pray for us.

- anon53279
32
I had a 6mm ischemic brain stem stroke less than two weeks ago. After remaining dizzy for 24 hours and nauseous, which I attributed at first to vertigo or inner ear problems, my right side became weak. I went to a doctor and had an MRI. The stroke was a small one but I'm still a little uneasy on my feet. I wasn't even admitted to a hospital. I've worked out all my life and I've even had three small workouts while waiting to see a neurologist at the earliest date in mid-November.
- anon50853
31
My sister is in the hospital because she had a brain stem stroke. at first they told me she was dying, then we saw little glimmers of hope, then setbacks. I chose to never lose faith as long as she is with us. my prayers are with all the families going through this.
- anon50569
30
I had two brain stem strokes, nine days apart in July and August. I lost right-side movement and feeling with the first stroke, left-side facial feeling, left-side hearing, balance and swallowing with the second stroke. Tomorrow it will be 90 days since the first stroke and I have back my swallowing, hearing, have some movement in my right hip-knee-ankle-toes and my right shoulder-arm-elbow-hand-fingers. I never lost any cerebral cortex or cognitive ability and my speech is different but fully functional. I teach on the college level (I turned 57 in August) so I returned home in September and taught my first class the next day.

To what do I attribute my miraculous experience? God, countless people who never ceased to pray, and Qivana -- a little nutritional supplement of herbs and probiotics I had begun taking daily in April.

- anon50500
29
My dad is 96 years and he suffered a brain stroke earlier this month. For about 10 days, he spoke, ran jokes and was his jovial self. The speech was somewhat slow, and also was his swallowing. Then a week ago, he could not swallow anymore, lost his speech and had difficulty breathing. He is breathing on his own with the help on machine that automatically kicks on and off as needed. He hears and reacts to my voice. He is in the ICU. He now has pneumonia, water in the lungs, an affected right lung and thick yellow secretion is being extracted. I am remaining strong and accepting God's will. God will decide the next move. For all who are in this similar situation my love and prayers goes out to each and every one of you.
- anon49946
28
My husband had a massive brain stem stroke in 2006. He was in the hosptial and rehab for 11 months. He couldn't walk, talk, eat, swallow, see.

He had a trach and peg tube and was very messed up. He came home in 2007 with the same issues. He got vital stimulation for his speech and swallowing for a good year and a half and now he can eat most stuff if he goes slow. He no longer has his trach to breath or a peg tube to eat. He gets rehab from me and out patient.

My husband was not brain dead when this happened I decided to get the trach and peg tube and with over 3 years of working hard we have come this far.

You have to be able to give it all you have. I still worked full time and choose to do all the nursing duties myself. I had no help at all from his family. My family and work helped me greatly with just a shoulder to cry on. This isn't an easy job but I was determined to see it thru no matter what.

He has a blockage again but we are going to get a stent. My husband is a miracle but you have to be strong willed to pull this off. God bless all of you and don't give up, It's to easy to take that route. Don't feel sorry. Push ahead and know you will be in the fight of your life. *Good Luck*

- anon49396
27
I had a brain stem stroke back in February, only a small one thank god, My balance wasn't great at the start and i was getting very tired. after a few days i had trouble walking, went to hospital and eventually it got worse. i couldn't swallow my food properly; it was a very frustrating time. My stroke was due to an underlying medical condition. I have more or less fully recovered and look forward to living a good life. I have been told it could happen again but i most keep going. It is very difficult for me to write this but my main point is you must never give up, keep yourself active and stay positive.
- anon47910
26
My father had a brain stem stroke on the Friday of Memorial Day weekend he was in ICU for three weeks. the doctor gave us no hope. he was moved to a hospice unit were he was taken off life support. he lasted two weeks and he died in June. I know in my heart he heard everything that was said in his room. If you're going through this my heart goes out to you because there is nothing any one can say to make it better. Just make sure you make every minute count.
- anon46899
25
I had swelling of the brain and brain stem axis due to whiplash in a 45 mph head-on in 1998. When they got me to the E.R., the hospital sent me home to die. I had brain convulsions, and couldn't swallow so I couldn't eat or drink so I had no pain medicine. I died of brain stem stroke due to the stretching of the spine and swelling of the brain. Elohim amd Jesus raised me from dead. Watch for my book "Gods True Messengers." God bless all of you as I pray God help you and yours as He helped me!
- anon46379
24
my mom had a brain stem stroke over six days ago. the doctors said there's nothing else they can do for her. she had kidney failure and is now on dialysis. she also had a trach put in today along with another breathing tube. when she came in she had a blood pressure over 300. she opened her eyes a couple of times, which wasn't expected and when i pinch her toes her legs move. she still has a gag reflex and coughs. is there anyone who can give a glimmer of hope because i'm lost, because the doctors say that she will never come out of this. she is 48 years old.
- anon46089
23
I had a brain stem stroke on September 24, 2001. I also was locked in. I knew everything going on around me but I was basically a vegetable. My family would come in to see me and I knew them and understood what they said to me but I could not respond in any way. That is the most frustrating thing about the stroke. When people would come to see me they would always ask my family what the chances were of me living. I could hear all of this but since I could not move my eyes or blink, they thought I was in a coma and could not hear. So when you go to visit your loved one please be careful what you say in their presence. I was in the hospital for two weeks and in rehab for six weeks. It takes the whole support group to get involved.
- anon45472
22
My sister in law had a massive brain stem stroke caused by a hemorrhage and high blood pressure. She is 40 years old and was 36 weeks pregnant. The baby was delivered and will be fine, albeit quite small for its gestational age. She has been on life support for five days and doctors do not expect her to make it. They say it's inoperable and fatal and want to withdraw life support shortly. What should we do? How long can she survive without support? She is only breathing about 40 percent on her own. Is there any hope?
- anon44547
21
my brother was diagnosed with a brain stem stroke. he seems to be ok with no visual damage. he takes a lot of meds because he had a lot of problems from being in vietnam war. i am wondering does anyone know what the future might be for him? i love him and i don't live too close to him.
- anon43967
20
My mother had a brain stem stroke back in She was on life support. She had no chance of recovery. So she died a few days later.
- anon43729
19
My mother is 49 and just had brain surgery for a meningioma. Afterwards I was told that she had a stroke on the brain stem. She is on a vent and not responding beyond occasional eye movements. Does anyone know anyone who this has happened to and recovered anything? Please let me know. I'm praying for a miracle here.
- anon41998
18
my dad had a brain stroke recently. He is walking with a walker at this point after physical therapy. His main complaint is feeling numbness on his right side after eating. Has anyone else had this type of symptom?
- anon41176
17
My father-in-law just had a brain stem stroke last night. He has all of the symtoms of a stroke. Slurred speech, hard to swallow, limp in arm and leg, dizziness. Do symtoms continue to get worse or does it stop where it is at? What can we expect? Thanks.
- anon40727
16
My husband is 54 and had a brain stem stroke yesterday. He is having double vision and trouble with his balance. we were lucky to have gotten him for treatment fast. we are all praying that he will be ok.
- anon39553
15
My sister is 51 and had a brain stem stroke in May. It has only been 2 months and she is doing great. At first she could not talk, walk or use her right arm. She now walks about 70 feet with a hemi walker and uses the bathroom by herself. She still cannot do too much with her right hand, but I taught her how to do things using her left hand. She has been in rehab the whole time but they only can do so much for her, and then she loses her temper. Are the temper and mood swings part of the stroke? Now she is feeling sorry for herself and does not want to help herself. Is that normal too?
- anon39550
14
my father just suffered a brain stem stroke yesterday. fortunately, he is still articulate and relatively mobile so we're hoping the damage wasn't severe. any tips as far as what to look for or how to handle this situation? he's currently in icu and honestly we've never been through this.
- anon39189
13
hi,i just returned from the hospital for a weekend visit.I had stroke in my left lower brain around two weeks ago.I had the clot buster or TPA administered fairly quickly and since i had most of my stroke at the hospital and given my age of 37 which is pretty young for a stroke i am recovering quickly.They say iam lucky and no doubt i am because that TPA is incredible, but you must think and be really positive as that will get you through. your mind is more powerful than you realize and if you believe you will get better and not accept your deficits and be willing to put in the work you will beat it.Doctors always say that they don't know if you will recover 100 percent because that depends on you and what you think about and how you will deal with what your faced with. Many people accept their fate and live with many deficits while others come back stronger than before because of how they think. I will be better and stronger than before. Life means a lot more now.
- anon38237
12
7-18-09 My 32 yr old nephew had a massive brain stem stroke on 7-15-09. He never smoked, drank or used narcotics. Basically, your Joe America. After 2 brain surgeries to relieve his swelling, the doctor told us that there is no hope. His wife is planning on removing his life support on Monday. In my heart, I feel as though he has already passed on. I don't sense his soul's presence anymore. Once the life support is removed, about how long do you think he can linger with the support of Hospice.
- anon37327
11
My father had a brian stem stroke 1yr ago March of '08 he was not expected to live, and now he is walking w/ a walker and talking. He was paralized from the neck down and now he is living a next to normal life. He lives w/ mayself and my husband but is very independent. All I can tell everyone who is going through this is just hang in there it will get better w/ lots of heavy p/t you can live again.
- anon36407
10
My grandmother just died of one after have lung cancer surgery. this happened yesterday. she died instantly. this type of stroke is very bad. i couldnt believe something like that could happen to a person.
- anon36230
9
My nephew, 41 years old, suffered a brain stem stroke three years ago January. His wife tried to care for him in his mother's home by herself with very little or no help. She tried to work as they had no money. I am the aunt of the stroke patient and tried to be a caregiver as often as possible. Basically the winter months and back to the north in the summer.

He is now in a nursing home and has very little use of his arms and legs. He has to be feed and cared for completely.

My questions is where can you get help with stem cell research because I think this is the only thing that could help him.

- anon36079
8
3 weeks ago I had a Brain stem stroke which caused left ear hearing loss, left eye loss of movement and numbness/tingling on right side of body. The doctors at Emory Healthcare in Atlanta stated the bleed was in the pons due to a cavernous malformation. Has anyone ever heard of this before?

After reading the above stories it sounds like I am blessed to be alive.I give God all the credit!!!

- anon35404
7
i had a brain stem stroke when i was 16 years old, i'm 20 now!

i lost motor functions, equalibrium and dexterity in my whole right side and not very noticeably on my left, i lost my gag reflex and my ability to talk. never lost my vision, sense of touch/pain, my sense to hot/cold though. long term affects were it affected my short term memory, gave me asthma and motor functions are not the same as they used to be, bad immune system as well. i recovered in just 3-4 months and did outside therapy for a year now i'm basically back to normal.

when i had it i wanted to give up on life, but i'm still living my life all it takes is a will to live and lots perseverance.

- anon34155
6
posted by sheetal sood

My brother had a brain stem stroke 13 days back, he is also having clots in frontal lobes both right and left, he was kept on ventilators for a week but still he is unconscious, we are worried for him, can anybody tell me where i should take him? he was having his treatment in P.G.I chandigarh, then doctors asked us to take him back home, then we took him to Silver Oak chandigarh India, but now it's 13th day, soon we have to go home back as doctors asked us to do so, where should we take him for his next treatment?

- anon31827
5
My brother Nelson suffered a brain stem stroke a few days ago.

I went to see him the next day after a 300 mile drive.

The first day he looked very bad.

The second day there was some improvement.

He could move his arms and legs, squeeze my hand and open his eyes from time to time.

However, he needs help to breathe.

Nelson has not talked or made a sound this first week.

We are still not sure of the full extent of his condition.

Right now, it is wait and see.

It is a hard thing to deal with.

Many warning signs were there for years.

My advice to you is watch your weight and blood pressure.

Ask questions and eat right.

Be as active as you can and see a doctor regularly.

George Vreeland Hill

- Vreeland
4
For pirceyx2 or anyone who is dealing with locked in state: There is a French movie called the Diving Bell and the Butterfly. It is the true story of a guy who had a brain stem stroke and ended up in a locked in state. Using his right eyelid, he was eventually able to compose an entire novel, which is the basis for the movie. Showing this to a patient could serve as inspiration to continue living.
- anon26632
3
I had a brain stem stroke 3 months ago. Spent a month in hospital and inpatient therapy and outpatient therapy for the last 2 months. I have problems with left hand, left leg and swallowing. I'd like to hear from anyone who has recovered from a brain stem stroke. What specific therapy treatments work best? Does anyone have experience with treadmill therapy or hyperbaric chamber treatment?
- rooster
2
12/11 Thur had near fatal brainstem stroke. TPA administered 10 minutes before 3 hour window closed. Successful but have challenged ability to speak, severe weakness on right side and weakness on left side. Some transient difficulty in breathing. Scheduled for speech and PT starting next week. I know I am very lucky but what can I realistically expect as a prognosis? BTW I also have a deteriorating motor neuron disease, Hereditary Spastic Paraplegia, which complicates matters.
- CraigMattice
1
My friend suffered a brain stem stroke and she is paralyzed and in a locked in state on a vent/trach. Her drs are trying to wean her from the vent. She is sinking into depression. What can we do to encourage her will to live and those resp muscles to strengthen enough to wean off the vent?
- pirceyx2

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Last Modified: 22 November 2009

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