My husband has MDS and requires frequent blood transfusions (52 units per year for 2006 and 2007) with lesser amounts in 2004 and 2005. My question is, how long can someone survive receiving such large quantities of blood? It is hard to have discussions with his doctor as my husband, rightfully so, if afraid of hearing what the doctor would have to say. He is frustrated with his disease and directs his anger at me, his spouse. Is there any available website to discuss MDS with others either having the disease or having a loved one with it?
Moderator's reply: sorry to hear about your husband's condition. if you type in "myelodysplastic syndromes support" into your google search bar, there are several sites that come up with forums, support groups and information on current studies on the disease. best of luck to you and your husband!